Oral Presentation Clinical Oncology Society of Australia Annual Scientific Meeting 2021

Priority Recommendations for the Implementation of Patient Reported Outcomes in Clinical Cancer Care: A Delphi study (#126)

Carolyn Mazariego 1 , Michael Jefford 2 3 , Raymond J Chan 4 , Natasha Roberts 5 6 , Lesley Millar 7 , Antoinette Anazodo 8 9 10 , Susan Hayes 11 , Bena Brown 12 , Christobel Saunders 7 , Kate Webber 13 14 , Janette Vardy 15 16 , Afaf Girgis 17 , Bogda Koczwara 18 19
  1. The Daffodil Centre, a joint venture with Cancer Council NSW, The University of Sydney , Sydney , NSW , Australia
  2. Department of Health Services Research , Peter MacCallum Cancer Centre , Melbourne , VIC , Australia
  3. Sir Peter MacCallum Department of Oncology, University of Melbourne, Melbourne, VIC, Australia
  4. Caring Futures Institute, College of Nursing and Health Sciences, Flinders University , Adelaide , SA, Australia
  5. Metro North Health Service, Herston, QLD, Australia
  6. Centre for Clinical Research , University of Queensland , Herston, QLD, Australia
  7. Medical School , University of Western Australia , Perth , WA, Australia
  8. School of Women’s and Children’s Health, University of New South Wales , Randwick , NSW , Australia
  9. Kids Cancer Centre, Sydney Children's Hospital , Randwick , NSW, Australia
  10. Nelune Comprehensive Cancer Centre, Prince of Wales Hospital , Randwick , NSW , Australia
  11. Consumer representative, Patients First: The Continuous Improvement in Care-Cancer Project , Perth , WA, Australia
  12. Wellbeing and Preventable Chronic Diseases Division, Menzies School of Health Research, Charles Darwin University , Brisbane , QLD, Australia
  13. School of Medical Sciences , Monash University , Clayton, VIC , Australia
  14. Oncology Department , Monash Health , Clayton , VIC, Australia
  15. Sydney Medical School , University of Sydney , Sydney, NSW, Australia
  16. Concord Cancer Centre, Concord Hospital , Concord, NSW , Australia
  17. Centre for Oncology Education and Research Translation (CONCERT), Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, University of New South Wales , Liverpool, NSW , Australia
  18. Department of Clinical Oncology , Flinders Medical Centre , Adelaide , SA, Australia
  19. Flinders Health and Medical Research Institute, Flinders University , Adelaide , SA, Australia

Aims: The aim of this study was to develop priority recommendations for the service level implementation of patient reported outcomes (PROs) into clinical cancer care.

Methods: Development of draft guidance statements was informed by a literature review, the Knowledge to Action (KTA) implementation framework, and discussion with PRO experts and cancer survivors. A two-round modified Delphi survey with key stakeholders including cancer survivors, clinical and research experts, and Information Technology specialists was undertaken. Round 1 rated the importance of the statements and round 2 ranked statements in order of priority.

Results: Round 1 was completed by 70 participants with Round 2 completed by 45 participants. Forty-seven statements were rated in Round 2. In Round 1, highest agreement items (>90% agreement) included those that focused on the formation of strong stakeholder partnerships, ensuring ongoing communication within these partnerships, and the use of PROs for improvement and guidance in clinical care. Items ranked as the highest priorities in Round 2 included assessment of current staff capabilities and service requirements, mapping of workflows and processes to enable collection, and using collected PROs to guide improved health outcomes.

Conclusions: This stakeholder consultation process has identified key priorities in PRO implementation into clinical cancer care that include: clinical relevance, stakeholder engagement, communication, and integration within the existing processes and capabilities. Routine adoption of PRO collection by clinical cancer services requires multiple implementation steps; of highest priority is strong engagement and communication with key stakeholders including cancer survivors.