Aim: To enhance the experience of people with cancer by providing equitable access and a systematic approach to cancer supportive care (SC) screening, using a validated electronic tool.
Method: A targeted approach was adopted to meet the unique needs of radiotherapy (RT) patients, coupled with a culturally diverse catchment within a metropolitan health service. This involved incorporating the validated distress thermometer[1] with a tailored problem list.
Health literacy and languages other than English were identified as a specific consideration. As such, infographics were co-designed for each problem list item, and accredited translations of the tool were undertaken. Furthermore, an innovative online solution was developed to support the reach of the electronic Supportive Care Screening Tool (e-SCST). This allowed patients to complete the e-SCST on a portable mobile device with results automatically emailed to the health service. Nursing staff reviewed and discussed the results during their initial nursing consultation which enabled prompt SC actions.
Results: The pilot evaluation involved utility testing of the e-SCST. 100% of patients (n=18) rated the e-SCST as simple to follow and use. 95% of patients acknowledged it was important to discuss their concerns during treatment, and 83% of screening results were documented as being discussed with patients.
The pilot evaluated the SC actions following SC screening. The most common SC action reported by patients was discussion and not needing any additional information (39%, n=7), followed by staff arranging a referral to another healthcare professional (28%, n=5).
Conclusion: The e-SCST pilot project highlighted the value of using a translated e-SCST in a culturally diverse population. The inclusion of infographics supported health literacy needs. Addressing unmet SC needs using an equitable and systematic approach empowered and enhanced the experience of people with cancer during radiotherapy.
[1] National Comprehensive Cancer Network (NCCN): https://www.nccn.org/