Background: Victorian tumour summits (VTS) are clinician-led forums and quality improvement initiative of the Victorian Cancer Plan 2020-24. Linked dataset analysis identifies unwarranted variations in tumour-based clinical practice and cancer outcomes that could be addressed through state-wide action. Understanding patient experience also contributes to delivering best cancer care. A meaningful consumer engagement model implemented in 2018-2021 brings the experience of people affected by cancer to service improvement planning via the VTS.
Method:
The model includes: recruitment of cancer patients through Victorian Integrated Cancer Services consumers, local clinicians and peak cancer organisations; initial interviews; formation of a consumer working group, developing, administering and analysing results of a patient experience survey; focus groups to determine improvement priorities based on survey feedback; and active participation in the summit.
Consumers present agreed priorities for improvement at each Summit, complimenting state-wide clinical care data for the target cancer. Variations in care identified by consumers and demonstrated in clinical data are explored in small groups of multidisciplinary cancer specialists, healthcare representatives and consumers. Variations are prioritised for improvement and addressed through state-wide and local projects post-summit.
Results:
To date,117 consumers have participated in 4 tumours summits; lung (24), brain (21), prostate (27) and breast (37) cancer summits, contributing approximately 940 hours. Consumers identified key areas for improvement:
improving access to
95% of summit participants reported consumer perspectives aided understanding of patient and carer experience.
Outcomes include:
Conclusion
Tumour summits provide a unique forum for consumers to communicate with clinicians and influence service improvement in Victoria.