Adam Lynch is President of BEAT Bladder Cancer Australia, Australia’s leading bladder cancer patient advocacy charity.
Adam founded BEAT in 2018 following the tragic loss of his wife due to bladder cancer. As carer, Adam had to navigate a world where there was a real lack of patient-centric information and support available for bladder cancer patients & carers.
At a time when patients & carers are under huge emotional stress they need -
BEAT’s philosophy is to think and act with the PATIENT front-of-mind, making information & support accessible, understandable and actionable.
Adam talks about how BEAT have tackled these challenges to support bladder cancer patients, carers & their families at their greatest time of need - What do patients want & need? Why do they need it? When do they need it?
Adam also talks about how to make the patient community aware of what patient organisations do and how they can help - What is the best way of reaching patients? Collaborating with other organisations? How to get your name out there? How to develop trust?
Join us for a fascinating success story into the power of consumer insight and involvement to best help patients, carers & families when they most need it.